One more day before my next Lupron shot. One more day to feel relatively
normal. One more day of walking without a limp for a few days. One more
day of being able to taste my food for a few days.
My
appointment with my oncologist is tomorrow morning at 9:00 AM, Mountain
Time. We'll talk about where he thinks we
should go from here. But the fact that I'm still scheduled for my shot
tells us something. His assistant called about a half hour ago to
confirm my appointment. At first, she said that my appointment tomorrow
is just a follow-up, so I don't need to come in early. That raised my
eyebrows. Change of plans? No such luck. She just hadn't read my whole
report. I am still on the schedule for a 6 month Lupron shot tomorrow.
There's also a 4 month version of the shot, but I can't imagine why
anyone would want to get that shot more often. Maybe some people can't
tolerate the 6 month shot.
I know that I could have it a lot
worse. I could be in the hospital hooked up to a bunch of machines right
now. Compared to many, if not most guys in my shoes, I'm getting off
really easy, at least so far. So I am well aware that I have no room to
complain about the relatively mild side effects that I'm experiencing.
But in the immortal words of Joe Walsh, I can't complain, but sometimes I
still do. I know you don't come here to listen to me complain. Or do
you?
Please understand that I'm not making this out to be a
bigger deal than it is. I'm not worrying over baseless expectations.
Instead, I'm basing my dread on past experience. If you've been reading
this journal, you know that it's pretty much been one long narrative of
the effects of Lupron on my body. It affects everything. My appetite, my
moods, my ability to go outside, my ability to feel, and for the first
few days, even my ability to walk.
This is a huge, nasty needle.
The tech warms the liquid in the syringe up in her hands before she
sticks the needle in, since the fluid she's about to inject into the
body just came out of the refrigerator. Even that causes dread in a guy
who's sensitive to cold. The shot goes in my back hip, right below the
belt. Once the shot goes in, she tries to work it in with her hands,
because it tends to collect where the needle goes in. But that only goes
so far. I end up with a stiff area about 4 inches in diameter that
makes me walk with a limp until it spreads into my system. Once it's all
the way in my system, then I can't feel or taste for about a week.
After that, the side effects get milder.
But as you're well
aware, they never go away completely, at least not for 6 months plus.
Once I've had my last Lupron shot, I wonder how long it will take for
the side effects to completely disappear.
I expect to only get
three more of these. According to my oncologist, the aggressiveness of
my cancer will prevent Lupron from working for more than about two
years.
My wife is still off work this week, so she will be with me
for the appointment. Immediately after the shot, she has a doctors'
appointment. So I get to spend my first hour or two after the shot in
waiting rooms, reeling from it.
I love the fact that Lupron is
keeping my PSA level down for now, but I dislike everything else about
it. I hate the way it makes me feel. I really hate the way it strips
away my filters. I'm still having trouble with anger, but I'm at least
aware that it's a problem, and I'm trying to learn to take a breath. It
happened twice this morning, once while trying to plug in a computer
cable that had bent pins, and once while running errands. But I managed
to keep my cool. This is very strange for me, having to deal with issues
like this.
I will definitely post tomorrow, but it may be late
in the day. There will be lots to share, and I know you will want to
know what's going on. But once we get home, we may want to talk things
over between the two of us first. Then I will call my parents. Then I'll
post.
It seems like every time I have a really serious post, I
follow it up with a silly one. Like this past weekend. No Excuses was
followed up by Welcome To Womanhood. My albums tended to be the same
way. My second album, Sin No More, was deadly serious. My third, Drive-Thru World,
is downright goofy. But I don't think tomorrow's post will be very
funny. It will probably be mostly informational, which is rare in this
journal. It will be nice to actually have news!
So like I said
earlier, the fact that I'm still scheduled for my Lupron shot tells me
that we're at least going to keep doing Lupron until it stops working.
We'll see if a biopsy is in his plans, and if he recommends radiation.
For the first time, I will ask for a prognosis. Once we know what he
wants to do, we'll take some time and decide what we want to do. Because
we have options.
I will devote an entire post to this issue
soon, so I won't go into it now. But the major decision Sharon and I
will be making soon, regardless of my results or prognosis, is whether
to pursue standard Western medical treatment, or go with alternatives.
Thanks to the generosity of friends, we can decide which we want to do,
and it's covered either way. Have I mentioned lately that I'm the
richest man in town?
We have a dinner tonight at the church that we've decided to make our church home for the time being, All Saints Ministry.
I'm very glad that I can go because I haven't had my shot yet. I'm glad
I won't walk in with a limp, and I'll be able to taste my food. One
more day.
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